Yayasan Scleroderma Indonesia (YSI) is a non-profit organization that is social and humanitarian in the health sector. Yayasan Scleroderma Indonesia was originally called Komunitas Scleroderma Indonesia (KSI) which was formed on October 18th, 2011 and managed by Sari Mort, Nurjanah Bruggeman and Patrisia Ayu.
Based
on concern for the increasing number of Scleroderma sufferers in Indonesia and
the lack of information about one of these autoimmune diseases, the managers
have formed a legal organization that provides a place for Scleroderma patients
in Indonesia. On November 28th, 2016 Komunitas Scleroderma Indonesia was
changed to a legal entity under the name Yayasan Scleroderma Indonesia with the
founder of Patrisia Ayu, based on
Notary Deed Number 18 by Notaris Sakti Harlambang, SH., M.Kn by Decree of the
Minister of Law and Human Rights. AHU-0044748.AH.01.04.Tahun 2016..
One of the goals of
the establishment of the Indonesian Scleroderma Foundation is to increase the
participation of the Indonesian people in general and paramedics in particular
in channeling education and appropriate information about scleroderma and the
importance of early detection of this autoimmune disease. Yayasan Scleroderma
Indonesia is a place and facility for Scleroderma sufferers, sufferers
families, volunteers and health practitioners involved or interested in
supporting, sharing and exchanging information about Scleroderma through
education and experience.
The Scleroderma Foundation Indonesia is a facility for Scleroderma patients, families of Scleroderma patients, volunteers and health practitioners involved or interested in supporting, sharing and exchanging information about Scleroderma through education and experience.