History

Yayasan Scleroderma Indonesia (YSI) is a non-profit organization that is social and humanitarian in the health sector. Yayasan Scleroderma Indonesia was originally called Komunitas Scleroderma Indonesia (KSI) which was formed on October 18th, 2011 and managed by Sari Mort, Nurjanah Bruggeman and Patrisia Ayu.

Based on concern for the increasing number of Scleroderma sufferers in Indonesia and the lack of information about one of these autoimmune diseases, the managers have formed a legal organization that provides a place for Scleroderma patients in Indonesia. On November 28th, 2016 Komunitas Scleroderma Indonesia was changed to a legal entity under the name Yayasan Scleroderma Indonesia with the founder of Patrisia Ayu, based on Notary Deed Number 18 by Notaris Sakti Harlambang, SH., M.Kn by Decree of the Minister of Law and Human Rights. AHU-0044748.AH.01.04.Tahun 2016..

One of the goals of the establishment of the Indonesian Scleroderma Foundation is to increase the participation of the Indonesian people in general and paramedics in particular in channeling education and appropriate information about scleroderma and the importance of early detection of this autoimmune disease. Yayasan Scleroderma Indonesia is a place and facility for Scleroderma sufferers, sufferers families, volunteers and health practitioners involved or interested in supporting, sharing and exchanging information about Scleroderma through education and experience.