Scleroderma is a relatively difficult disease to study because of its varied nature, over time, and the number of people affected is relatively small. With this condition, it is difficult to conduct scientific studies that prove the efficacy of certain medications or medications. Therefore, doctors should make informed decisions about treatment based on incomplete information. Doctors should consider the possible benefits gained on potential risks or side effects. Further examination will ultimately determine which treatment is useful.
· Be Vigilant of Symptoms
Learn to recognize the early symptoms of the disease in order to detect early scleroderma and treatment can begin immediately, the sooner the treatment begins, the better the results are expected. If a person has been diagnosed with scleroderma, it is important to pay attention and report to the doctor if any new symptoms or symptoms change. Early treatment can prevent symptoms from worsening and can reduce the likelihood of permanent tissue or organ damage.
· Develop Individual Treatment Programs
Although there is no cure for Scleroderma, much can be done to prevent, minimize, or reduce the effects and symptoms that arise. The symptoms of Scleroderma vary greatly from individual to individual; where everyone’s response to treatment also varies greatly. Because of this the doctor will perform an individually tailored treatment program to meet the specific needs of a person with this disease. Close cooperation with your doctor will help him develop the program.
· Physical and Sports Therapy
Physiotherapists can help develop an appropriate program for people with scleroderma. The program consists of range of motion exercises (as mentioned in the previous chapter on the sclerodactyly and joint contractures), hydrotherapy or water therapy, strengthening exercises for weak muscles and gentle massage. This treatment can be performed in various locations, including physiotherapy and home hospitals.
The doctor will also recommend an exercise program that involves activities such as stretching, walking or swimming. People with Scleroderma have limited movement, so activity should not be excessive and rest when tired. Individual exercises should be done gently and carefully, and the exercise program should be stepped up gradually.
· Protecting the Joints
The purpose of protecting the joints is to minimize the more severe damage and reduce the possibility of suppurating the skin to infection, by avoiding or minimizing pressure on the joints so that mobility and function with stretching and motion exercises. A variety of self-help aids and adaptive mechanical tools are available to help protect and reduce stress in joints, in carrying out daily living activities.
· Taking Drugs
People with Scleroderma are required to take all drugs regularly; only taking the medicine prescribed by the doctor; read the warning labels and follow the instructions carefully, when to drink, for how long, and the doses prescribed by your doctor. People with Scleroderma should consult a doctor for any medications taken for other illnesses including drugs that can be purchased without a doctor’s prescription, herbal supplements, or vitamins. If any side effects are found to be immediately reported and discussed.
You do not have to worry if your doctor prescribes different medications with other scleroderma people, because Scleroderma symptoms vary from one person to another, requiring different treatments. Some sufferers may benefit from certain medications, while others may not. The individual tolerance for each type of drug varies, your doctor will adjust the appropriate treatment program.
· Assessment that Can Be Used
Some steps people can take with Scleroderma to improve their quality of life. These steps include:
· Avoid being too tired, relaxed, and rested; knowing your own limitations does not mean that you are lazy.
· Learn to control and minimize stress.
· Eat a balanced diet and maintain a normal weight.
· Practicing good hygiene habits, especially skin, teeth, gums, and legs (including wearing soft, comfortable shoes).
One of the benchmarks, mentioned earlier, is to avoid smoking. The health risks of smoking are notorious but often overlooked. It is very dangerous for people with scleroderma because it can have an effect on blood circulation and lung function.
· The Emotional Aspects of Scleroderma
A person’s general reaction when told has a disease like Scleroderma is why me? A person does not carry Scleroderma into him, so there is no need to feel guilty or feel responsible for the disease.
Someone newly diagnosed with Scleroderma may feel alone and do not know where to get help. She may feel emotional reactions such as disbelief, fear, anger, denial, self-blame, or guilt, grief, sadness, or depression. Other family members may have similar feelings.
Sharing with family and friends or with others who have the same experience can be very helpful. Professional counseling can also help people with Scleroderma and their family members who have difficulty coping with feelings.
Think of yourself as a person with a life that has a future. It will help to see Scleroderma in a positive perspective and enable one to maintain a positive but realistic attitude.
· Build a Healthy and Supportive Network
Active participation in self-care is very important for people with scleroderma. Work together and communicate effectively with your doctor. The health team begins with your doctor, but may include many other health experts such as other specialists, nurses, physiotherapists and therapists and psychologists or others trained in counseling.
Family and friends can provide emotional support for people with Scleroderma, supporting them to follow recommended treatment programs and help carry out difficult activities.
Join a support group for Scleroderma, such as the one who joins the Scleroderma Foundation of Indonesia, people with Scleroderma can meet and exchange information with others who have similar problems, and to learn more about Scleroderma.
· Is there hope and help for people with Scleroderma? Firmly, YES!
There are many treatments and medications available to help people with scleroderma and many doctors are getting interested in this disease.
Researchers around the world are intensifying their efforts to discover the cause of Scleroderma, to find better treatment for prevention and treatment.
Travel Scleroderma Disease
Scleroderma has many forms and a number of different symptoms that can be seen singly or in various combinations at various times during the course of the disease. Some symptoms develop in a relatively quick time; while others take years to develop. The course of the disease is definitely unpredictable, and the prognosis will vary from individual to individual. Systemic scleroderma is a chronic illness for life. Currently there is no cure that can cure Scleroderma, but like other chronic diseases, there are many ways to control the symptoms that arise. Many people with this disease have minimal symptoms and can approach normal people.
There are times when people with Scleroderma will be free of disturbing symptoms and feel healthy for a long time (remission). Spontaneous advances may occur, especially on the skin, may soften and become more flexible after several years of treatment.